Public and patient involvement

Public and Patient Involvement  is where service users, carers and members of the public take an active role in research studies. This could be any or all of the following: ​

  • Being part of a research team as a lived experience or service user researcher. ​

  • Being part of a Lived Experience Advisory Panel (LEAP) or Advisory Group attached to a research project and having input into the design, methodology , analysis and dissemination of the research. ​

  • Being part of consultations and collaborative partnerships which help to identify what research needs to be carried out – setting out the research agenda and priorities. ​

  • Helping to develop research proposals ​

​It is really important to be aware of the very real differences between being actively involved in research (such as the examples above) and taking part in research as a research participant. ​​There are also other terms used in the involvement field, such as co-design; co-creation and co- production. ​

Information for researchers​

All health and social care research taking place in the NHS in England must meet the principles of good practice detailed in the UK Policy Framework for Health and Social Care Research. All clinical studies with a definition of ‘research’ taking place in the NHS must also obtain Health Research Authority (HRA) approval. ​

The R&D team will provide support and guidance to staff on development of home-grown (sponsored) research and will also assist with the set-up of research to assess and confirm capacity and capability for a research study.

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